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Huntington's Disease Association Case Study

Huntington’s Disease Association - Family Activity Weekend

Highlighting the value of family events for those with Juvenile Huntington's Disease

Each year the Huntington’s Disease Association (HDA) holds a family weekend event for people who are affected by Juvenile Huntington’s Disease (JHD), a particularly rare early-onset variant of Huntington’s Disease, whereby individuals exhibit symptoms before the age of twenty.

The weekend provides an opportunity for affected families from all over the country who wouldn’t normally meet, to get together, share experiences and support each other in a safe, friendly and understanding environment.

With the event being held over a sunny weekend in June at the Calvert Trust activity centre in the Lake District, the Huntington’s Disease Association asked Dead Ready Productions to come along and film some interviews with parents of children with Juvenile Huntington’s Disease, so they could share their experiences and talk about the challenges they face.

The idea was then to create a DVD that could be distributed and used as training material, to help those involved in supporting families affected by Juvenile Huntington’s Disease, to better understand the impact the condition can have.

In addition to the interviews Dead Ready Productions also filmed the children and their families taking part in a range of activities, from canoeing to rock climbing, demonstrating how they can have a great time and take a positive attitude towards life, despite difficult circumstances and the daily challenges they face.

Following the weekend Dead Ready Productions created a short video clip of each family that was interviewed, as well as a summary video showcasing the weekend.


The project was thoroughly enjoyable for all involved, the Dead Ready Productions crew, the Huntington’s Disease Association team and the children and families who were in attendance over the weekend of the filming. Cath Stanley, Chief Executive of the Huntington’s Disease Association, comments following the completion of the project;

“Thank you for the DVDs, we are delighted with them!”

This project is a great example of how the medium of video can be used to help bring people, who are spread out geographically, together as one, creating a human, and emotional connection to what otherwise could be a very isolating situation.

If you would like to find out more about the services Dead Ready Productions offer, please feel free to get in touch via the button below or by calling +44 (0)208 339 6139.

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